Today, November 4th is CRPS/RSD awareness day.
(Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy)
Tonight, the Bank of America Plaza in downtown Dallas will glow orange as it did last year.
This photo was taken over 15 miles away.
It was so exciting to know that people all over the area were seeing it and asking questions about it.
CRPS/RSD is difficult to explain. It is a rare disorder of the sympathetic nervous system that causes the brain to send continuous pain signals long after an injury occurred. It is like the sudden pain of hitting your funny bone....only that initial sharp pain doesn't go away. The following posters from the internet help explain how it feels to have CRPS/RSD.....
It is very frustrating.
(Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy)
Tonight, the Bank of America Plaza in downtown Dallas will glow orange as it did last year.
It was so exciting to know that people all over the area were seeing it and asking questions about it.
CRPS/RSD is difficult to explain. It is a rare disorder of the sympathetic nervous system that causes the brain to send continuous pain signals long after an injury occurred. It is like the sudden pain of hitting your funny bone....only that initial sharp pain doesn't go away. The following posters from the internet help explain how it feels to have CRPS/RSD.....
It is very frustrating.
And very painful.
We have low pain days and days that are off the charts. But when you live with it 24/7, you have to come to grips with it and learn ways to cope and push the pain into the background. My art has been my coping mechanism. God has exceedingly blessed me with the ability to draw. And now I am learning to paint. And I was blessed to have been placed with a hand specialist early on who taught me to "move it or lose it", as my affected limb is my dominant hand, arm and shoulder.
We have low pain days and days that are off the charts. But when you live with it 24/7, you have to come to grips with it and learn ways to cope and push the pain into the background. My art has been my coping mechanism. God has exceedingly blessed me with the ability to draw. And now I am learning to paint. And I was blessed to have been placed with a hand specialist early on who taught me to "move it or lose it", as my affected limb is my dominant hand, arm and shoulder.
At this point there is no cure.
2 comments:
Wow, Dawn -- I had no idea you were going through this. You've been coping with it so seamlessly -- it must be terrible to endure something so painful with no outward symptoms, because then it becomes so frustrating when people can't see what you're experiencing. I imagine your faith is helping you along this journey -- sometimes I think that's the only thing that gives comfort and keeps us moving. I'm sending prayers to you with the hope that you'll continue to stay strong. God bless you.
Diane
Yes, Diane, my faith in God is everything to me. He gives me strength to keep moving and comfort when the pain is rough. I appreciate your prayers! Thank you so much for leaving a comment! It's so good to hear from you!
Post a Comment